Social pain in oncological patients eligible to palliative care in home care: Integrative review
DOI:
https://doi.org/10.33448/rsd-v10i5.13847Keywords:
Palliative Care; Home care services; Loneliness.Abstract
Introduction: The prevalence of chronic non-communicable diseases (CNCDs) has increased in recent decades, and neoplasms appear in second place deserving prominence in the current scenario. The experience of changing social roles accompanied by feelings of anxiety, abandonment and loneliness is called social pain, which most often accompanies the cancer patient. This article aims to know and understand the causes of social pain in cancer patients eligible for home palliative care. Methodology: This is an integrative literature review with bibliographic search of the last five years, in the PUBMED database, using the following research guiding question: What are the causes of social pain of people with cancer eligible for palliative care in home care? Results: After analyzing the criteria, 3 articles were defined for review because they met the selection criteria. Conclusion: The causes of social pain involve activities of daily living, changing roles, isolation and loneliness. Palliative care and home care play a valuable role in addressing, preventing and providing relief from social pain, however, there is a lack of knowledge on the part of health professionals on this topic, which can be better addressed in educational institutions.
References
Aktas, D. & Terzioglu, F. (2012). Effect of Home Care Service on the Quality of Life in Patients with Gynecological Cancer. Asian Pac J Cancer Prev, 16 (9), 4089-4094
Bosi, M. L. M. (2012). Pesquisa qualitativa em saúde coletiva: panorama e desafios. Ciência e saúde coletiva. 17(3), p. 575-586.
Campos, S., Zhang, L., Sinclair, E., Tsao, M., Barnes, E.A., Danjoux, C., Sahgal, A., Goh, P., Culleton, S., Mitera, G. & Chow, E. . (2009). The palliative performance scale: examining its inter-rater reliability in an outpatient palliative radiation oncology clinic. Support Care Cancer. 17(6):685-90
Crofford, L. J. (2015). Chronic Pain: Where The Body Meets The Brain. Trans Amer Clin and Climat Assoc. 126:167-81
Didoné, L. S., Jesus, I. T. M., Orlandi, A. A. S., Pavarini, S. C. I., Orlandi, F. S., Guarisco, L. P. C., Gratão, A. C. M., Say, K. G., Cominetti, M. R., Gomes, G. A. O. & Zazzetta, M. S. (2020). Factors associated with depressive symptoms in older adults in context of social vulnerability. Revista Brasileira de Enfermagem. 73(1).
Figueiredo, J. F., Souza, V. M. S., Coelho, H. V. & Souza, R. S. (2018). Qualidade de Vida de Pacientes Oncológicos em Cuidados Paliativos.
Frossard, A., Rodrigues, L., Oliveira, B. & Fernandes, C. (2018). Serviço Social e Oncologia: os Cuidados Paliativos em foco. E-revista.
Freire, M. E. M., Costa, G. F. S., Lima, G. A. R. & Sawada, M. O. (2018).Qualidade de vida relacionada à saúde de pacientes com câncer em cuidados paliativos. Texto e contexto - enfermagem. 27(2).
Hennemann-Krause, L. (2012). Dor no Fim da Vida: Avaliar para Tratar. Revista Hospital Universitário UERJ.11:26, 31-32.
Mendes, K. D. S., Silveira, R. C. de C. P., & Galvão, C. M. (2008). Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto & Contexto - Enfermagem, 17(4), 758–764. DOI: 10.1590/s0104-07072008000400018
Ministério da Saúde. DATASUS. (2019). Mortalidade Geral no Brasil por Neoplasias.
Ministério da Saúde. INCA. O que é câncer? (2019).
Ministério da Saúde. INCA. Estimativa de Câncer no Brasil, 2020.
Monteiro, D. R., Almeida, M. A. & Kruse, M. H. L. (2013). Tradução e adaptação transcultural do instrumento Edmonton Symptom Assessment System para uso em cuidados paliativos. Revista Gaúcha Enfermagem. 34(2).
Perone, S. A., Nokolic, R., Lazic, R., Dropic, E., Vogel, T., Lab, B., Lachat, S., Hudelson, P., Matis, C., Pautex, S. & Chappuis, F. (2018). Addressing the needs of terminally-ill patients in Bosnia-Herzegovina: patients’ perceptions and expectations. BMC Palliat Care. 17(1):123
Roque, T. da S., Silva, B. T. da, Santos, C. S., Sousa, J. I. dos S. & Perim, L. F. (2020). Palliative care in elderly people: a literature review. Research, Society and Development. S. l.(9). DOI: 10.33448/rsd-v9i4.3010.
Sarmento, V. P., Gysels, M., Higginson, I. J. & Gomes, B. (2017). Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Supportive & Palliative Care. 390–403.
Souza, K. R. & Kerbauy, M. T. M. (2017). Abordagem quanti-qualitativa: superação da dicotomia quantitativa-qualitativa na pesquisa em educação. Educação e Filosofia. 31(61), p. 21-44.
Vasconcelos, G. B. & Pereira, P. M. (2018) Cuidados paliativos em atenção domiciliar: uma revisão bibliográfica. Revista de Administração em Saúde. 18(70).
Waterkemper, R. & Reibnitz, K. S. (2010). Cuidados Paliativos: A avaliação da dor na percepção de enfermeiras. Revista Gaúcha Enfermagem. 31(1):84-91.
World Health Organization. (2016). Definition of Palliative Care,
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Copyright (c) 2021 Alexandre Ernesto Silva; Gabriel Alves Silva; Kariny Aparecida Trevisan da Silva; Mariana Ferreira dos Santos; Thayane Vieira Carvalho; Stefãne Amorim Ribeiro
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