Spirituality in pediatric palliative care: a scoping review protocol
DOI:
https://doi.org/10.33448/rsd-v10i16.23459Keywords:
Palliative Care; Pediatrics; Spirituality.Abstract
Objective: This study aims to describe the protocol and methodology used to carry out a scope review that will map the scientific evidence on spirituality in the context of pediatric palliative care. Methodology: This is a scope review that will be developed according to the recommendations of the Joanna Briggs Institute (JBI). For the writing of the study, the PRISMA Extension for Scoping Reviews (PRISMA-ScR) will be used. A comprehensive search will be carried out in the Web of Science, Scopus, Cochrane Library, PubMed, CINAHL and EMBASE databases, in addition to the gray literature search in the Google Scholar, ProQuest and OpenGrey databases, without limitation as to year of publication and language. In addition, an additional search for articles will be performed by reading the references of the studies included in the review. Primary and secondary studies that address spirituality in the context of pediatric palliative care will be included, regardless of the type of design. Documents such as letters, comments, editorials and opinion articles will be excluded. The selection of studies by reading the titles, abstracts and full text will be conducted by two independent reviewers. Data extraction will be performed using a form built by the authors based on JBI recommendations. Data will be organized, summarized and analyzed for extent, nature, distribution and recurring patterns, and the results will be communicated narratively and through network maps. Final considerations: It is expected that the results from this scope review can contribute to strengthening the use of spiritual care for children under palliative care, with the scope of promoting a better quality of life for them and their families. Additionally, it is intended through this research to encourage health professionals to meet this dimension during the care of children under palliative care, with a view to providing humanized care and quality spiritual assistance that can help them in their search for a meaning for life, in relieving pain and making it easier to deal with the anguish and fear that permeate this process.
References
Academia nacional de cuidados paliativos. (2018). Análise Situacional e Recomendações da ANCP para o desenvolvimento dos Cuidados Paliativos no Brasil. Academia Nacional de Cuidados Paliativos. <https://paliativo.org.br/wp-content/uploads/2018/12/ANALISE-SITUACIONAL_ANCP-18122018.pdf>.
Antunes, M. F.; Souza, C. L. & August, M. E. M. (2021). Fundamentos E Aplicação Da Capelania Hospitalar. Revista Cógnito, 3(1): 22–39.
Arksey, H. & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology: Theory and Practice, 8(1): 19–32.
Cuartas-Hoyos, P.; Charry-Hernández, R. L.; Ospina-Muñoz, P. & Carreño-Corredor, S. (2019). Cuidado espiritual: una mirada desde el modelo de manejo de síntomas y el cuidado paliativo. Cuidado espiritual, 18(1): 1–17, 2019.
Elmescany, E. N. M & Barros, M. L. P. (2015). Espiritualidade e terapia ocupacional: reflexões em cuidados paliativos. Revista do NUFEN, 7(2), 1-24.
Francisco, D. P.; Costa, I. C. P.; Andrade, C. G.; Santos, K. F. O.; Brito, F. M. & Costa, S. F. G. (2015). Contributions of the Chaplaincy Service To the Care of Terminal Patients., Texto Contexto Enferm, 24(1): 212–9.
Francisco de oliveira, N.; Amaral Neto, A. M.; Souza, C. R.; Zoboli, I.; Lago, P. M. & Barbosa, S. M. M. (2017). Cuidados Paliativos Pediátricos: O que são e qual sua importância? Cuidando da criança em todos os momentos Departamento Científico de Medicina da Dor e Cuidados Paliativos Presidente: Simone Brasil de Oliveira Iglesias Secretário. Departamento Científico de Medicina da Dor e Cuidados Paliativos, p. 1–9.
INCA; Ministério, Saúde; SUS; Serviços de Cuidado Paliativo Gestão Da Qualidade. [S.d.]. <https://bvsms.saude.gov.br/bvs/publicacoes/inca/gestao_da_qualidade.pdf>.
Kawasati, I.; & Risky. (1990). Estatuto da Criança e do adolescente Lei n.° 8.069, de 13 de Julho de 1990, 4(1).
Lima, S. F., Lamy, Z. C., Motta, V., Roma, T. M., Gomes, C., & Souza, T. P. (2020). Dinâmica da oferta de cuidados paliativos pediátricos: estudo de casos múltiplos [The dynamic of the supply of pediatric palliative care: a multiple case study]. Cadernos de saude publica, 36(9), e00164319.
Marriel, S. M. (2016). A espiritualidade na condição pós-moderna. Doctor, p. 69–78.
Peters, M., Marnie, C., Tricco, A. C., Pollock, D., Munn, Z., Alexander, L., McInerney, P., Godfrey, C. M., & Khalil, H. (2020). Updated methodological guidance for the conduct of scoping reviews. JBI evidence synthesis, 18(10), 2119–2126. https://doi.org/10.11124/JBIES-20-00167
Puhl, T. M. Um olhar especial à capelania hospitalar pediátrica. p. 0–44, 2019.
Robert, R., Stavinoha, P., Jones, B. L., Robinson, J., Larson, K., Hicklen, R., Smith, B., Perko, K., Koch, K., Findley, S., & Weaver, M. S. (2019). Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature. Pediatric blood & cancer, 66(9), e27764.
Silva, R. C. F.; Hortale, V. A. (2006). Cuidados paliativos oncológicos: elementos para o debate de diretrizes nesta área. Cadernos de Saúde Pública, 22(10): 2055–2066.
Srivastava, P. & Hopwood, N. (2009). A Practical Iterative Framework for Qualitative Data Analysis. International Journal of Qualitative Methods, 8(1): 76–84.
Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., et al. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Annals of internal medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
Zambusi, L. N.; Sarnoa, M. T. C. & Alvesa, M. A. J. (2019) conhecimento médico a respeito das diversas religiões nos cuidados pediátricos. Rev Paul Pediatr., 37(4):479-485.
WHO Definition of palliative care/WHO Definition of palliative care for children. Geneva: World Health Organization; 2002 (http://www.who.int/cancer/palliative/definition/en/, accessed 17 March 2018).
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2021 Fabiana Helena da Conceição; Viviani Aparecida Fraga; Cristiane Aparecida Silveira Monteiro; Melissa Santos Nassif; Isabelle Cristinne Pinto Costa
This work is licensed under a Creative Commons Attribution 4.0 International License.
Authors who publish with this journal agree to the following terms:
1) Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
2) Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
3) Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.
