Palliative care for non-oncological children: admissions profile in a University Hospital

Authors

DOI:

https://doi.org/10.33448/rsd-v11i13.35405

Keywords:

Palliative Care; Chronic disease; Child, pediatric nursing.

Abstract

Introduction: The concept of Palliative Care (PC) has, over the years, undergone updates in its meaning, as well as therapeutic approaches, having been extended to various chronic conditions. The pre-existing model of PC underwent a process of resignification to serve the pediatric population, since it did not fully correspond to the specific needs of this age group. Objective: To characterize children with chronic diseases, eligible for palliative care admitted to a university hospital. Method: A cross-sectional study with a quantitative approach, carried out in a high-complexity public university hospital in southern Brazil. The study population consisted of 101 children aged 0-14 years hospitalized from November 2018 to March 2019. Results: 51.4% of the participants were female, the prevalent age group was 0-5 years old (64.3%). Of the total number of participants, 45 (44.5%) had chronic conditions, and of these, 28 were eligible for PC. However, only 14 (50.0%) received assistance from this perspective. Conclusion: The study identified a significant number of children with chronic conditions and their late insertion in PC when eligible. It was noted the scarcity of national research that addresses PC when aimed at these children.

References

Arantes, A. C. Q. (2017). Cuidados paliativos: um desafio para a saúde [Entrevista de Conensus]. https://www.conass.org.br/consensus/cuidados-paliativos-um-desafio-para-saude/

ANCP. ([s.d.]). Cuidados Paliativos Infantis. Academia Nacional de Cuidados Paliativos. http://paliativo.org.br/cuidados-paliativos-infantis

Barbosa, S. F. A., Santos, N. H. F., Carneiro, J. A., Costa, F. M. D., & Vieira, M. A. (2020). Perfil das crianças internadas na unidade de pediatria de um hospital universitário de Minas Gerais: um estudo comparativo. Temas em Saúde, 20(2), 140–162. https://doi.org/10.29327/213319.20.2-8

Bergsträsser, E. (2018). Pädiatrische Palliative Care: was ist bei Kindern anders als bei Erwachsenen? Therapeutische Umschau. Revue therapeutique, 75(2), 101–104. https://doi.org/10.1024/0040-5930/a000973

Conselho Regional de Medicina de São Paulo (2008). Cuidado Paliativo. (CREMESP)

Costa ,T. S., &. Morais, A. C. (2017). A hospitalização infantil: vivência de crianças a partir de representações gráficas. Rev Enferm Ufpe Online, 358–375.

Duarte, J. G., Gomes, S. C., Pinto, M. T., & Gomes, M. A. S. M. (2012). Perfil dos pacientes internados em serviços de pediatria no município do Rio de Janeiro: mudamos? Physis (Rio de Janeiro, Brazil), 22(1), 199–214. https://doi.org/10.1590/s0103-73312012000100011

Elorza Parra, M., García Salido, A., Vanegas Díaz, C., & Fernández Laverde, M. (2018). Características epidemiológicas, clínicas y evolutivas de los pacientes pediátricos con enfermedades crónicas y limitantes, susceptibles de recibir atención por cuidados paliativos en el Hospital

Forte, D. N. (2017). Cuidados paliativos: um desafio para a saúde [Entrevista de Conensus]. https://www.conass.org.br/consensus/cuidados-paliativos-um-desafio-para-saude

Instituto Brasileiro de Geografia e Estatística (2010). Pesquisa Nacional por Amostra de Domicílios: um panorama da saúde no Brasil, acesso e utilização dos serviços, condições de saúde e fatores de risco e proteção à saúde. IBGE.

Lago, P., & Piva, J. (2012). Pediatric palliative care in Brazil. Em Pediatric Palliative Care: Global Perspectives (p. 417–430). Springer Netherlands.

Lima, S. F., Lamy, Z. C., Motta, V. B. R., Roma, T. M., Gomes, C. M. R. de P., & Souza, T. de P. (2020). The dynamic of the supply of pediatric palliative care: a multiple case study. Cadernos de saude publica, 36(9), e00164319. https://doi.org/10.1590/0102-311X00164319

Martins, P. L., Azevedo, C. S., & Afonso, S. B. C. (2018). O papel da família nos planos de tratamento e no cuidado pediátrico hospitalar em condições crônicas complexas de saúde. Saúde e Sociedade, 27(4), 1218–1229. https://doi.org/10.1590/s0104-12902018170402

Mendes, E. V. (2018). A abordagem das condições crônicas pelo Sistema Único de Saúde [Entrevista de C. &. S. Coletiva]. https://www.scielo.br/j/csc/a/cdNGmPZ6qRFKzRn4qZLXWRB/abstract/?lang=pt#

Michaelis: Dicionário Online Brasileiro da Língua Portuguesa. ([s.d.]). Melhoramentos. https://michaelis.uol.com.br/busca?r=0&f=0&t=0&palavra=cr%C3%B4nico.

Michel, M. H. (2005). Metodologia e Pesquisa Científica em Ciências Sociais.

Moura de Moura, F., Costa Junior, Á. L., de Amorim Silva, M. E., da Silva Reichert, A. P., & Collet, N. (2015). Hospitalized child and teenager with chronic diseases: feelings about death. Investigacion y Educacion En Enfermeria, 33(3), 565–572. https://doi.org/10.17533/udea.iee.v33n3a21

Namachivayam, P., Shann, F., Shekerdemian, L., Taylor, A., van Sloten, I., Delzoppo, C., Daffey, C., & Butt, W. (2010). Three decades of pediatric intensive care: Who was admitted, what happened in intensive care, and what happened afterward. Pediatric Critical Care Medicine, 11(5), 549–555. https://doi.org/10.1097/PCC.0b013e3181ce7427

Olímpio, A. C. S., Oliveira, B. S. B., Costa, J. B. C., & Joventino, E. S. (2018). Clinical-epidemiological profile of hospitalizations in the pediatric unit of a public hospital in Ceará. REME, 22. https://doi.org/10.5935/1415-2762.20180044

Organização Mundial da Saúde. (2003). Cuidados inovadores para condições crônicas: componentes estruturais de ação: relatório mundial.

Paulino, A. L. de O., Oliveira, P. P. dos S., Matos, G. M., Pinto, K. R. T. F., & Zani, A. V. (2022). Musicoterapia nos cuidados paliativos em neonatologia: representações de profissionais de saúde. Research, Society and Development, 11(9), e10511931475. https://doi.org/10.33448/rsd-v11i9.31475

Royal College of Paediatrics and Child Health. (2018). A Guide to Children’s Palliative Care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 40.

Salvador, M. S., Gomes, G. C., Oliveira, P. K., Gomes, V. L. O., Busanello, J., & Xavier, D. M. (2015). Strategies of families in the care of children with chronic diseases. Texto & contexto enfermagem, 24(3), 662–669. https://doi.org/10.1590/0104-07072015000300014

Sociedade Brasileira de Pediatria. (2017). Cuidados Paliativos Pediátricos: O que são e qual sua importância? Cuidando da criança em todos os momentos (Departamento Científico de Medicina da Dor e Cuidados Paliativos, Org.). SBP. https://www.sbp.com.br/fileadmin/user_upload/2017/03/Medicina-da-Dor-Cuidados-Paliativos.pdf

Souza, T. C. F., Correa Júnior, A. J. S., Santana, M. E., & Carvalho, J. N. (2018). Cuidados paliativos pediátricos: análise de estudos de enfermagem. Revista de enfermagem UFPE on line, 12(5), 1409. https://doi.org/10.5205/1981-8963-v12i5a231901p1409-1421-2018

Thumfart, J., Reindl, T., Rheinlaender, C., & Müller, D. (2018). Supportive palliative care should be integrated into routine care for paediatric patients with life-limiting kidney disease. Acta Paediatrica (Oslo, Norway: 1992), 107(3), 403–407. https://doi.org/10.1111/apa.14182

Wilson, D., Hockenberry, M., & Rodgers, C. C. (2018). Wong Fundamentos de Enfermagem Pediátrica (10o ed). Elsevier Editora Ltda.

Word Health Organization. (2002). national cancer control programmes: policies and managerial guidelines (WHO, Org.). https://www.who.int/cancer/media/en/408.pdf

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Published

09/10/2022

How to Cite

ROSA, J. B. O.; KOBAYASHI, K.; PASCHUETTO, G. L. .; SANTOS, M. Y. F. dos; NAZAR, A. C.; GABANI, F. L. .; SOUZA , S. N. D. H. de; TACLA, M. T. G. M. . Palliative care for non-oncological children: admissions profile in a University Hospital. Research, Society and Development, [S. l.], v. 11, n. 13, p. e343111335405, 2022. DOI: 10.33448/rsd-v11i13.35405. Disponível em: https://www.rsdjournal.org/index.php/rsd/article/view/35405. Acesso em: 25 apr. 2024.

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Vol. 11 No. 13

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Health Sciences

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Copyright (c) 2022 Jhennifer Brendha Oliveira Rosa; Karina Kobayashi; Giovana Leite Paschuetto; Marcela Yasmin Ferreira dos Santos; Andressa Costa Nazar; Flávia Lopes Gabani; Sarah Nancy Deggau Hegeto de Souza ; Mauren Teresa Grubisich Mendes Tacla

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